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Research Participant Information

Department of Health & Human Services Pamphlet

ClinicalTrials.gov: The government's Clinical Trials site provides patients, family members, and members of the public easy and free access to information on clinical studies for a wide range of diseases and conditions.

Clinical Trials and Insurance Coverage from NCI: This site is a resource guide to help you understand the critical issue of how to cover the costs of care.

Department of Health & Human Services Pamphlet:

GetResearchSmart.org: This website provides a variety of resources to those who may be interested in participating in research.

National Cancer Institute: This site provides a list of NCI’s clinical trials.

National Institutes of Health (NIH) Clinical Trials Website: Search the collection of research studies that are being conducted at the NIH Clinical Center.

The NIH, National Heart Lung and Blood Institute website provides a link on their homepage to information about children in Clinical Studies.

Participating in Clinical Trials: This FDA site provides information and links about participating in research studies.

patientINFORM.org: This is a free online service that provides patients and their caregivers access to some of the most up-to-date, reliable, and important research available about the diagnosis and treatment of specific diseases.

The Center for Information & Study on Clinical Research Participation (CISCRP): This nonprofit organization is dedicated to educating the public, research community, media, and policy makers about clinical research participation and the role that each of them play.

Informed Consent Process

Informed Consent: The National Cancer Institute explains informed consent and the consent process.

A Guide to Understanding Informed Consent: This guide from the National Cancer Institute will tell you what to expect during the informed consent process, explain its importance, and describe how it fits into a larger system that protects the welfare of people who take part in clinical trials.

Is a Research Study for You?: The Medical College of Wisconsin, with support by the National Institutes of Health, presents a guide to understanding your rights and responsibilities as a participant in a research study.

Children's Assent to Clinical Trial Participation: The National Cancer Institute explains assent, a child’s agreement to participate in a clinical trial, and the assent process.

General Health Information

FDA Kids' Home Page: Information just for kids and teens from the U.S. Food and Drug Administration (FDA). Kids and teens can learn about health and safety through songs, quizzes, interactive games, puzzles, and more.

Genetics Home Reference: This site of the National Library of Medicine is a consumer-friendly guide to understanding genetic conditions and the effects of genetic variations on human health.

Glossary of medical terms: a list of terms you may hear during your conversations with the researchers about participating in a research study.

NIH Health Information: This website links you to information about specific diseases and conditions.

MedlinePlus: This site brings together authoritative information from the National Library of Medicine, the National Institutes of Health (NIH), and other government agencies and health-related organizations to help answer health questions.