Patient Support Groups

Note: The Kaplan-Amonette Department of Dermatology and University of Tennessee make no recommendation or endorsement of organizations listed. This list is provided solely as a public service and is not meant to be all-inclusive. Individuals must determine for themselves how to use the information provided. When making medical decisions, a physician should always be consulted.

Albinism

The National Organization for Albinism and Hypopigmentation
PO Box 959
East Hampstead, NH 03826-0959
Phone: 800-473-2310 (US and Canada)
Phone: 603 887-2310
Fax: 800-648-2310
Websiteexternal_link
E-mail: webmaster@albinism.org

Cutaneous T-cell Lymphoma

Cutaneous Lymphoma Foundation
PO Box 374
Birmingham, MI 48012-0374
Phone: 248-644-9014
Fax: 248-644-9014
Websitelink
Contact

Ichthyosis

Foundation for Ichthyosis and Related Skin Types
1364 Welsh Road G2
North Wales, PA 19454
Phone: 215-619-0670
Fax: 215-619-0780
Websitelink
Email: info@scalyskin.org

Mastocytosis

The Mastocytosis Society
Websitelink

Mycosis Fungoides

Cutaneous Lymphoma Foundation
PO Box 374
Birmingham, MI 48012-0374
Phone: 248-644-9014
Fax: 248-644-9014
Websitelink
Contact

Porphyria

The American Porphyria Foundation
4900 Woodway, Suite 780
Houston, TX 77056-1837
Phone: 713-266-9617
Toll Free: 1-866-APF-3635
Fax: 713-840-9552
Websitelink

Rare Disorders

National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: 203-744-0100
Tollfree: 800-999-6673 (voicemail only)
TDD Number: 203-797-9590
Fax: 203-798-2291
Websitelink
Email: orphan@rarediseases.org

Alopecia Areata

National Alopecia Areata Foundation (NAAF)
14 Mitchell Boulevard
San Rafael, CA 94903
Phone: 415-472-3780
Fax: 415-472-5343
Websitelink
E-mail: info@naaf.org

Eczema

National Eczema Association
4460 Redwood Hwy., Ste. 16-D
San Rafael, CA 94903-1953
Phone: 415-499-3474/ 800-818-7546
Fax: 415-472-5345
Websitelink
E-mail: info@nationaleczema.org

Lupus Erythematosus

Lupus Foundation of America, Inc.
National Office:
2000 L Street, N.W., Suite 710
Washington, DC 20036
Phone: 202-349-1155 (8:30 a.m. - 5 p.m. EST, Monday - Friday)
Fax: 202-349-1156
1-800-558-0121 (Information request line)
1-800-558-0231 (Para información en Español)
Websitelink

Melanoma

American Melanoma Foundation
12395 El Camino Real, Suite 117
San Diego, CA 92130
Phone: 858-882-7712
Websitelink

The Melanoma Research Foundation
170 Township Line Road,Bldg B
Hillsborough, NJ 08844
Phone: 1-800-MRF-1290
Fax: 908-281-0937
Websitelink

Pemphigus and Pemphigoid

International Pemphigus & Pemphigoid Foundation
1540 River Park Drive, Suite 208
Sacramento CA 95815
United States of America
Phone: 916-922-1298
Fax: 916-922-1458
Websitelink

Psoriasis

National Psoriasis Foundation
6600 SW 92nd Ave., Suite 300
Portland, OR 97223-7195
Phone: 503-244-7404
800-723-9166
Fax: 503-245-0626
Websitelink
Email: getinfo@psoriasis.org

Contact Us

Eva Bryant
Administrative Support Assistant
Phone: 901-448-5795
Fax: 901-448-8284
Email: ebryant@uthsc.edu
Address:
930 Madison Ave suite 840
Memphis, TN 38163