Sickle Cell Websites

Sickle Cell Disease Association of America (SCDAA) is a patient advocacy site with information for the public.
Center for Disease Control and Prevention's Hemoglobin S Allele and Sickle Cell Disease, is an excellent article about sickle cell genetics and epidemiology.
The Comprehensive Sickle Cell Centers, a description of a major clinical research program supported by the NHLBI.
Harvard Sickle Cell Program is a comprehensive source for information for patients and health care providers.
The Sickle Cell Information Center offers a broad range of information for the public and professionals.
National Organization for Rare Disorders, Inc., an information portal for all rare diseases.
ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers and a search engine for clinical trials in different diseases.
The National Newborn Screening and Genetics Resource Center (NNSGRC) offers nformation and resources for health professionals, public health community, consumers, and government officials.
Genetic Alliance is a support organization for different genetic problems.

BCDD Publications

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