Legislation Regarding Developmental Disabilities

Understanding Title V of the Social Security Act


History and overview of the Title V legislation and Children with Special Health Care Needs (CSHCN) services overseen by the Maternal and Child Health Bureau and provided by state programs.

Omnibus Budget Reconciliation Act of 1989 Social Security Act §501


SEC. 501. [42 U.S.C. 701] (a) (C) (D) (2)

All states are mandated by Amendments to Title V of the 1935 Social Security Act in the Omnibus Budget and Reconciliation Act of 1989 (OBRA '89) to "provide and to promote family-centered, community-based, culturally-competent, coordinated care for children with special health care needs." The term "care coordination services" means services to promote the effective and efficient organization and utilization of resources to assure access to necessary comprehensive services for children with special health care needs and their families. [ 673 (3)]

OBRA '89- SEC. 1615 - Rehabilitation Services For Blind And Disabled Individuals


SEC. 1615. [42 U.S.C. 1382d] (a) In the case of any blind or disabled individual who--

(1) has not attained age 16; and (2) with respect to whom benefits are paid under this title Social Security is authorized to reimburse the State agency administering or supervising the administration of a State plan for vocational rehabilitation services approved under title I of the Rehabilitation Act of 1973 for the costs incurred under such plan in the provision of rehabilitation services to individuals who are referred for such services pursuant to subsection (a) (1), in cases where the furnishing of such services results in the performance by such individuals of substantial gainful activity for a continuous period of nine months

EPSDT - OBRA '89 - State by State Impact of the OBRA 1989 EPSDT Provisions


National Association of Medicaid Directors - In 1989, the Congress amended the Early and Periodic Screening, Diagnosis, and Treatment (EPSDT) requirements of the Medicaid statute to provide coverage for children of medically necessary treatment services, regardless of whether or not the services are part of the state's benefit package, and to impose new reporting requirements on EPSDT activities. The OBRA 1989 Medicaid changes contributed greatly to increased state costs for services to children. A relaxation of at least some of the reporting requirements, plus adoption by the Department of Health and Human Services of implementing regulations that would allow states to manage the service requirements more effectively, could provide welcome fiscal relief to the states. This paper presents some more detailed information with respect to the impact of these OBRA 89 changes. EPSTD serves children and youth to the age of 21.


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